CTNNB1 Connect and Cure - Run for Research

Join us for the Steps Toward a Cure 5K Run/Walk, an event bringing our community together to raise awareness, inspire hope, and make a difference for individuals and families affected by CTNNB1 Syndrome.

Whether you choose to run, walk, push a stroller, or simply come out to show your support, every step represents something bigger than the miles we cover. It represents the children fighting through daily challenges, the families navigating a rare diagnosis, and the hope for a future with better treatments and, ultimately, a cure.

Proceeds from the event will benefit CTNNB1 Connect & Cure, supporting its mission to advance research, increase awareness, connect families, and accelerate progress toward treatments and a cure for CTNNB1 Syndrome.

CTNNB1 Syndrome may be rare, but together, our voices, our efforts, and our impact can be anything but small.

Lace up your shoes, bring your family and friends, and help us turn every step into progress.

Run for Hope. Walk for Change. Unite for a Cure.

Because every step counts, and every child deserves a brighter tomorrow!