We cordially invite you to participate in the 8th annual UBA5 Awareness Walk. This event will raise money for the UBA5 Foundation. The Foundation will invest your money in medical research for treatment options and provide financial support to families with children affected by this disease. The UBA5 Foundation was founded by two eastern Kansas families who after years of testing discovered their children suffered from this rare genetic mutation. Currently, there are only around 30-40 people affected worldwide, and growing. Individuals with this genetic mutation suffer from irretractable epilepsy, dystonia, developmental delays, microcephaly, hypotonia, spasticity, failure to thrive, and vision defects. UBA5 also causes progressive brain deterioration, atrophy and necrosis. Little is currently known about this mutation and there is no standard treatment for any one patient. This is why raising funds for continuing research is vital. More research means treatment plans and possibly a CURE for those suffering. The symptoms of UBA5 also limit the ability to walk, talk or run. We are going to MOVE for them by raising awareness and funds.
We hit our $50,000 goal and are in the process of investing it in research initiatives. We are starting over with a new $50,000 goal! Help us reach our goal and MOVE for those affected by UBA5.
Aug 22, 2026
Distance — 1 Miles
Type — Running
09:00
$35.00
Aug 22, 2026
Distance — 1 Miles
Type — Running
09:00
$20.00
Aug 22, 2026
Distance — Awareness Walk (Children Under 3 years of Age)
Type — Running
09:00
$0.00
These values represent the 3-year monthly averages for August in Topeka.
Learn more about the host city, Topeka.
Topeka is the capital of Kansas. Visitors come to see the Kansas Museum of History, Topeka Zoo, and Renisch Rose Gardens. The metropolitan area is rich in history and highly favored by nature. In 2019, it was home to 125,000 people.
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